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An Educator's Guide to UCDs

From the New England Consortium of Metabolic Programs, Educator's Guide to UCDs has been created for teachers to help support children with UCD at school. The guide includes information about UCDs, new research on the most common learning challenges in UCD, guidance for educators on what they can do to help, and a guide to create a communication plan for parents and teachers.

The New England Consortium of Metabolic Programs

The Consortium brings together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. 

The goals of the Consortium are to disseminate information, collaborate in the development of social support programs and educational materials, support organizations for parents and adults with metabolic disorders, provide training for students in medicine and related fields, jointly develop and conduct research projects, and establish uniform treatment protocols for individuals with metabolic disorders.

The National Urea Cycle Disorders Foundation (NUCDF)

The National Urea Cycle Disorders Foundation is a non-profit organization dedicated to the identification, treatment and cure of urea cycle disorders. NUCDF is a nationally-recognized resource of information and education for families and healthcare professionals.

Our organization was formed in 1988 by a handful of parents whose children were affected. The Foundation is operated and supported by the volunteer efforts of families with children suffering from UCDs and is a supportive network of families, friends, and medical professionals.

Genetics Home Reference

Consumer-friendly information about human genetics from the U.S. National Library of Medicine                                                          

Although there are other variations in this group, we're including the most common:

Add to our resources! Do you recommend any helpful groups, books, organizations that would be useful to other educators/parents? Please share the specific titles or addresses with us.