The Sickle Cell Disease Association of America has envisioned a national coordinated approach to addressing things related to sickle cell disease since 1971. There are member organizations across the country.
Consumer-friendly information about human genetics from the U.S. National Library of Medicine
Genetics Home Reference for Sickle Cell disease
The mission of the Sickle Cell Information Center is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources.
KidsHealth is the #1 most-visited website for children's health and development.
Sickle Cell Kids is for kids with sickle cell disease to have a way to connect with others.
The AAP endorses these Health Supervision Guidelines. Families may find these helpful when talking to their pediatricians or family physicians.
Tips for Supporting Students with Sickle Cell Disease was created by the CDC in order to provide a tool for teachers, other school staff, and parents/caregivers to support students living with SCD.