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Physical Activity, Trips, Events

What you need to know

  • People with PWS will need to be monitored to avoid foraging for food or stealing money to buy food.
  • During meal times, it is important to watch child’s eating as choking has been reported. 
  • Any change in routine may produce anxiety, fears, and/or worry. Even a fun activity can produce anxiety and resulting behavioral challenges. Crowds and loud noise may be overwhelming to some people. 
  • If you live in New England (USA) and qualify, Northeast Passage offers Therapeutic Recreation and Adaptive Sports programming.

What you can do

  • Be proactive and discuss any change in schedule or setting with the child ahead of time. 
  • Use social stories and pictures to help them understand the change.
  • Role play different social settings and appropriate behavior.