site logo


Fragile X Syndrome: Diagnosis, Treatment, and Research
This book published in 2002 by John Hopkins University Press is a good resource. It was edited by Randi Jenssen Hagerman, M.D. and Paul J. Hagerman, M.D., Ph.D. Here is a link to for more details.
National Fragile X Foundation

The Fragile X Foundation We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.

FRAXA Research Foundation
link   Finding a Cure for Fragile X

link  Learn more about the genetics of Fragile X.

American Academy of Pediatrics (AAP) - Health Supervision Guidelines
The AAP endorses the Health Supervision Guidelines. Families may find these helpful when talking to their pediatricians or family physicians.
Classroom Accommodations for Students with Visual Issues

Classroom Accommodations for Students with Visual Issues is a resource from Boulder Valley Vision Therapy, P.C., in Boulder, Colorado. It describes a variety of variety of issues and offers strategies.

Fragile X Foundation - Vermont Chapter
Vermont Chapter of the National Fragile X Foundation is a resource for all affected by Fragile X in the state of Vermont.They help families, spread awareness, find improved treatments, support research, act as advocates, and provide educational opportunities for all affected by a Fragile X-associated disorders. On Facebook, search for @fragilexvt.
Genetics Home Reference

Consumer-friendly information about human genetics from the U.S. National Library of Medicine

Genetics Home Reference for Fragile X

Add to our resources! Do you recommend any helpful groups, books, organizations that would be useful to other educators/parents? Please share the specific titles or addresses with us.