Fragile X Syndrome: Diagnosis, Treatment, and Research
This book published in 2002 by John Hopkins University Press is a good resource. It was edited by Randi Jenssen Hagerman, M.D. and Paul J. Hagerman, M.D., Ph.D. Here is a link to Amazon.com for more details.
National Fragile X Foundation
The Fragile X Foundation We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure.
- Education Guidelines - developed with individuals with FX in mind, but may help others with similar characteristics even without an official diagnosis
- Best Practice in Educational Strategies and Curricula
- Lesson Planning Guide
FRAXA Research Foundation
link Finding a Cure for Fragile X
GeneReviews
link Learn more about the genetics of Fragile X.
American Academy of Pediatrics (AAP) - Health Supervision Guidelines
The AAP endorses the Health Supervision Guidelines. Families may find these helpful when talking to their pediatricians or family physicians.
Classroom Accommodations for Students with Visual Issues
Classroom Accommodations for Students with Visual Issues is a resource from Boulder Valley Vision Therapy, P.C., in Boulder, Colorado. It describes a variety of variety of issues and offers strategies.
Fragile X Foundation - Vermont Chapter
Vermont Chapter of the National Fragile X Foundation is a resource for all affected by Fragile X in the state of Vermont.They help families, spread awareness, find improved treatments, support research, act as advocates, and provide educational opportunities for all affected by a Fragile X-associated disorders.
On Facebook, search for @fragilexvt.
Genetics Home Reference
Consumer-friendly information about human genetics from the U.S. National Library of Medicine