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Emergency Planning

What you need to know and do

All individuals need an emergency letter to be given to health care providers. This letter should include:

  • an explanation of the management of acute metabolic decompensation, with the emphasis on preventative measures (i.e. intravenous glucose regardless of “normal “lab results and overnight hospital observation) 
  • contact information of the individual’s metabolic specialist

What you need to do

Assist parents (???) in providing the letter to health care providers.