What you need to know and do
All individuals need an emergency letter to be given to health care providers. This letter should include:
- an explanation of the management of acute metabolic decompensation, with the emphasis on preventative measures (i.e. intravenous glucose regardless of “normal “lab results and overnight hospital observation)
- contact information of the individual’s metabolic specialist
What you need to do
Assist parents (???) in providing the letter to health care providers.