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GeneReviews - Hypermobile EDS

Gene Reviews - Hypermobile EDS

Learn more about the genetics of Hypermobile EDS.

GeneReviews- Classical EDS

Gene Reviews: Classical Ehlers-Danlos

Learn more about Classical EDS

Genetic Home Reference - EDS

Consumer-friendly information about human genetics from the U.S. National Library of Medicine

Genetics Home Refernece for Ehlers-Danlos syndrome

Ehlers-Danlos National Foundation
School Issues with Ehlers-Danlos syndrome

Five Frequently Asked Questions about EDS And School by Peggy Rocha Snuggs 

Peggy was an educator in Tampa, Florida who is now retired after 35 years of teaching.  She's also the mother of a daughter with EDS. She is currently a volunteer on the Board of The EDS Network CARES and is the author of the booklet: Educator’s Guide Meeting the Needs of the Ehlers-Danlos Child and Parent’s Guide to Helping Your Child Succeed at School.

2017 International Classification of the Ehlers-Danlos Syndrome

Article from the American Journal of Medical Genetics

Add to our resources! Do you recommend any helpful groups, books, organizations that would be useful to other educators/parents?

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