Gene Reviews - Hypermobile EDS
Learn more about the genetics of Hypermobile EDS.
Gene Reviews: Classical Ehlers-Danlos
Learn more about Classical EDS
Consumer-friendly information about human genetics from the U.S. National Library of Medicine
Ehlers-Danlos National Foundation
Our volunteers and our families are the lifeblood of our mission.
See their resource: 'Educator's Guide:Meeting the Needs of the Ehlers-Danlos Child / Parent's Guide: Helping Your Child Succeed at School"
Five Frequently Asked Questions about EDS And School by Peggy Rocha Snuggs
Peggy was an educator in Tampa, Florida who is now retired after 35 years of teaching. She's also the mother of a daughter with EDS. She is currently a volunteer on the Board of The EDS Network CARES and is the author of the booklet: Educator’s Guide Meeting the Needs of the Ehlers-Danlos Child and Parent’s Guide to Helping Your Child Succeed at School.
Article from the American Journal of Medical Genetics