The Cystic Fibrosis Foundation is a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.
"Living with CF at School", produced by the CF Foundation, is intended to help individuals manage CF at school.
Consumer-friendly information about human genetics from the U.S. National Library of Medicine
Here is a sample 504 Plan for a child with CF, written by a parent.
Here is a sample emergency plan and forms for a child with special health needs (including CF).
The Individuals with Disabilities Education Act (IDEA) is a law ensuring services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to more than 6.5 million eligible infants, toddlers, children and youth with disabilities.
The National Heart, Lung, and Blood Institute (NIH) "What is Cystic Fibrosis" Article
The Mayo Clinic has information about Cystic Fibrosis.