It is important to have HIGH LEARNING EXPECTATIONS for children who have CHARGE Syndrome. Encourage use of the core educational curriculum and modify it in order to meet the individual needs of the child.
What you need to know
Individuals with CHARGE syndrome often have multi-sensory challenges. They often have difficulties with vision, hearing, and the senses that perceive balance, touch, temperature, pain, pressure, and smell. Intelligence may be underestimated because of their vision, hearing, learning, motor, and/or speech disabilities. It is important for teachers and caretakers to take time to develop a relationship with the children and their families.
A team that is knowledgeable in sensory challenges is an important part of the child’s education team. Members of this team may include:
- Physical therapy
- Occupational therapy
- Speech therapy
- Sensory integration program specialist
- Deaf or Deafblind specialist
- Most states have access to a deaf blind specialist through the state deaf-blind project. Please see The National Center on Deaf-Blindness.
What you can do
The CHARGE Syndrome Foundation produced a Professional Packet that you may find helpful, in addition to the ideas below.
You may want additional information about your child’s disability, early intervention, school services, therapy, local policies, transportation, and much more. Every state in the USA has at least one Parent Training and Information Center (PTI) to offer families just this kind of information. To find your state’s center, go to the Center for Parent Information and Resources.