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Noonan Syndrome At a Glance

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The GEMSS website is intended primarily for educators and families of preschool through elementary 
school age children. While much of the information may also apply to older children, the authors are 
aware that there is a lack of information about transition issues that would be helpful for older 
children and young adults. It is our hope that this information can be added in the futur

Noonan syndrome (NS) may include findings of short stature, heart defects, distinctive facial features, and developmental delays.  Other findings may include differences in clotting ability, chest shape, lymph system, and in the eye, etc. Up to 1/3 of individuals with NS have a mild intellectual disability.

This condition is variable even within a family. This can range from subtle physical findings to more extensive changes.

NS is an inherited genetic disorder. About 1 in every 1000 to 2500 babies is born with NS.

Learn more about characteristics of Noonan syndrome.

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